Family Councils: Suggested Agendas

Many patients remain in the nursing home setting for the balance of their lives. Their final years can either be comfortable or tragic depending on the quality of care they receive.

It is difficult for an individual family to influence the nursing home’s management to improve patient care.

The best opportunity for success in improving patient care is through the nursing home’s Family Council.

Members of the council are the families of the residents. They can set their own agendas and present the facility with their concerns which must be addressed by management.

There are care issues that are common in nursing homes. The following is an outline of several of them and how they can affect nursing home patients’ quality of life.

1. Nutrition. When there is a shortage of staff in the facility, patients who are unable to feed themselves independently, suffer.

2. Hydration. A lack of adequate fluid intake is a cause of significant problems for residents including confusion, falls, and urinary tract infections.

Residents must have water conveniently located in their room. The water container must be regularly filled. Patients must be encouraged to drink water throughout the day.

Once again, inadequate staffing is usually the underlying problem when patients are dehydrated.

3. Assistance with Activities of Daily Living. Another area of concern is the insufficient number of nursing assistants to provide patients with assistance in their activities of daily living.

These activities include: bathing, dressing, grooming, transfers to bed and chair, ambulation, toileting, and eating (as discussed above).

The Family Council through its family members can provide factual accounts of care concerns at the facility and request that the facility provide adequate staff to attend to their vulnerable patients.

If cooperation isn’t forthcoming, the Council should then request the Arizona Department of Health Services to investigate the inadequacy in the facility’s level of care.
 

Why Is Mom Losing Weight? The Impact of Medication on Nutrition

An important yet overlooked consideration in the care of the elderly is the impact of medication on nutrition.

It is not uncommon for nursing home residents to be taking 9 or more medications. It is also not uncommon for physicians and nurses caring for nursing home patients to fail to consider the impact that medications may have on their patient’s appetite and their ability to absorb nutrients.

The remedy is simple and simply overlooked.

There is a dietary guide (Drug-Nutrient Resource) available in nursing homes and used by dietitians to assist them in evaluating unplanned weight loss.

The guide outlines the nutritional side effects of medications including appetite changes, weight changes, edema, altered taste, thirst, dry mouth, the risk of dental problems, GI distress, nausea/vomiting, diarrhea, constipation, blood pressure changes, drowsiness/weakness, etc.

However, in nursing homes, where communication among disciplines is poor; physicians, nurses and dietitians don’t customarily discuss common interactions between medications and nutrition.

Informed advocates and families may be the only source of information pertaining to this risk.
 

The Four Most Important Nursing Home Regulations

The world of nursing home care changed in 1987 when Congress enacted the OBRA (Omnibus Budget Reconciliation Act) regulations.

OBRA is a comprehensive set of rules created by clinicians and designed to be a blueprint for quality nursing home care.

I’ve studied and worked with these regulations for over ten years, and I believe that there are four principal regulations that form the backbone of quality care.

The four are:

1. Quality of Life (42 USC 483.15)
2. Quality of Care (42 USC 483.25)
3. Nursing Services (42 USC 483.30)
4. Administration (42 USC 483.75)

1. Quality of Life

“The facility must care for its residents in a manner and in an environment that promotes maintenance or enhancement of each resident’s quality of life.” (42 USC 483.15)

What does “quality of life” in a nursing home mean?

It means that each resident is entitled to:

1. Dignity
2. Self-determination
3. Participation in resident and family groups
4. Accommodation of needs
5. Activities
6. Social Services
7. Safe, clean and comfortable physical environment

Dignity
Each resident must receive care in a manner and in an environment that promotes dignity and respect.

Self-determination
Each resident must be given the opportunity to make their own choices of activities and services.

Participation in resident and family groups
Each resident must be given the opportunity to organize with other residents to discuss issues of common interest and concern.

Families of residents must also be given the opportunity to meet with other families to discuss grievances.

Under both circumstances, the facility must be responsive to concerns and grievances that are raised by these groups.

Accommodation of Needs
Each resident is to receive services in a manner that recognizes any special resident needs such as food choices or accessability requirements.

Activities
Each resident must be offered a program of activities that meets the interests, physical, mental and social abilities. Residents must be afforded the opportunity to participate in social, religious, and community activities of their choice.

Social Services
Each resident must receive medically related social services.

Safe, Clean and Comfortable Physical Environment
Each resident must be provided with a clean, safe and well lighted and ventilated living space.

2. Quality of Care

“Each resident must receive the necessary care and services to attain or maintain the highest practicable physical, mental and psychosocial well-being based on each resident’s assessment and plan of care.” (42 USC 483.25)

This requirement is fashioned to ensure that the resident’s outcome, and not the facility’s capacity, is paramount.

Resident Assessment
Each resident must be comprehensively assessed and evaluated on abilities, needs and risks, among them are the following:

Activities of Daily Living
The resident’s ability to bathe, dress and groom himself; to transfer and ambulate; eat and toilet independently.

Mental and Psychosocial Functioning
The resident’s mental and psychosocial strengths and weaknesses.

Nutrition
The risk for malnutrition must be determined and addressed.

Pressure Sores
The risk of pressure sores must be determined and addressed.

Plan of Care
Every resident need, as well as how the facility will address them, must be outlined in a Plan of Care.

3. Nursing Services

“Each resident must receive the nursing and related services to attain their highest practicable physical, mental and psychosocial well-being.” (42 USC 483.30)

There are no minimum national staffing levels, however, the facility must have sufficient nursing staff to provide each resident with assessments, planning, evaluation, direct care needs and supervision.

4. Administration

“Facilities must be administered in a manner that enables them to use their resources effectively and efficiently to attain or maintain the highest practicable physical, mental and psychosocial well-being of each resident.” (42 USC 483.75)

This is where the buck stops. The facility’s management must administer the facility so that it complies with all federal and state laws and regulations. The governing board sets policies and appoints the Administrator who is the general manager of the nursing home.
 

Nutrition is the Key to Patient Longevity in Nursing Homes

I look forward to the evenings my wife and I go out to dinner. I confess that I enjoy food. But, it wasn’t until I represented my first nursing home patient that I began to appreciate the central role food and water play in skilled nursing case.

Good nutrition is vital for the well-being of nursing home patients. It provides the calories, protein, vitamins, and minerals necessary for improving and maintaining the quality of life. The elderly do not have the reserves nor the immunity that a young person has. So, it doesn’t take long for an elderly patient to lose ground without proper nutrition.

By the same token, inadequate nutrition cannot only diminish the quality of life, but may also begin a downward spiral resulting in death.

Understanding “nutrition” in the nursing home requires us to consider the physical act of eating, the quantity of food consumed, and the quality of the food consumed.

The Act of Eating
Eating three well-balanced meals a day can save your life if you’re a nursing home patient. You may be thinking, “doesn’t every nursing home patient get three meals a day”?

“Eating” is the operative word. When a nursing home is short staffed, which is not an uncommon event, patients who are unable to feed themselves suffer.

Feeding a stroke patient or a patient with dementia a meal takes time, as long as an hour in certain cases but mealtime is a scheduled event which begins and ends on a schedule. Attempting to rush a disabled patient with feeding can result in choking or the aspiration of food into the lungs, which can lead to pneumonia.

When a facility lacks adequate staffing, patients unable to feed themselves may go without eating meals. Food trays placed in front of disabled patients may be taken away untouched without regard to the patient’s nutritional needs.

The most productive thing the family of such a patient can do is to visit and observe during lunch and dinner.

Percentage of Meals Eaten
Nursing homes keep track of the percentage of meals eaten on a “flow sheet”. This information is documented by the nurse assistants. The quantity of food served is calculated to provide a certain amount of calories and protein at each meal. A patient who consistently fails to eat meals will neither receive sufficient calories nor protein.

Given the lax nature of documentation in nursing homes, any notation as to percentage of meals eaten must be suspect. The scale is a patient’s best friend.

Unplanned Weight Loss
Patients who are unable to feed themselves should be weighed once a week to determine whether there is loss of weight.

Any unplanned weight loss must be addressed by nursing administration, the dietitian, and the patient’s physician immediately.

Protein: The Building Block of Life
Consuming an adequate amount of protein is important for every nursing home patient. It becomes a matter of life or death for patients recovering from surgery or patients who have developed pressure ulcers (bed sores). Protein is used by the body to repair damaged tissue, so inadequate protein results in the body’s inability to heal wounds.

Every nursing home is required, by federal regulation, to have a dietitian. Families of new patients should meet the dietitian to discuss the patient’s nutritional needs. Families should also meet with the dietitian at any time the patient isn’t eating well or is losing weight.

We may live to eat, but in a nursing home you eat to live. Enjoy your next meal.

Our Next Article
Our next article will discuss the importance of strict nursing home regulation and enforcement.

The “Guardian Blog” will provide information to help both families and professionals assess and improve the quality of nursing home care in Arizona and the Guardian Blog will encourage dialog with and among its readers.